The perception by patients about the impact of their disease on
daily life correlates poorly with clinical measures of that
disease. Therefore, evidence of a patient's quality of life (QoL)
cannot be inferred from clinical indices but must be measured
directly. With the use of validated questionnaires, QoL
becomes an objective assessment which complements the clinical
indices of the disease allowing doctors a complete insight into the
impairment of patient's life. Read Prof. Elizabeth Juniper opinion about the importance of quality of life in allergic rhinitis.
The evaluation of Quality of Life (QoL) is a way to objectively
assess how a patient or a population of patients subjectively feels
the impact of the allergic disease on his/her daily life.
It appears more and more essential to take QoL parameters into
consideration, as it is the way patients estimate the efficacy of
their treatment. Complementary to the doctor efforts mainly
focusing on the severity and evolution of symptoms, patients have
the feeling that their disease is not limited to their
symptomatology. Their experience of the disease is more global,
individual and consistent over time than the objective assessment
of the clinician.
To consider quality of
life:
allows a more realistic view of the
burden of the disease than considering symptoms alone
provides a sensitive way to address
the usefulness of the treatment
is obviously important to stimulate
patient's compliance to treatment.
Some data of recently published papers are presented in the next
pages concerning:
Most of the allergic disorders are not life-threatening and
still considered as benign diseases. This can lead to a low rate of
consultation by patients, a weak medical follow-up, under-diagnose
and under-treatment. The potential evolution towards asthma, the
risk of anaphylactic reactions, as well as the severity of their
impact on patients daily life, requires a fundamental change in the
perception of those diseases, by the public, patients, doctors and
health authorities.
Treatment of allergic diseases must not any more be
considered as trivial.
Already, the ARIA new classification1 of allergic
rhinitis suggests to evaluating the severity of the disease
according to criteria linked to the patient's quality of life (table 1). Firmly
focused on the patient's well-being and the necessity to deal with
his/her specific needs, this new type of assessment is expected to
better take into account the satisfaction of the patient regarding
the efficacy and tolerance of the treatment, and thereby to promote
his/her compliance.
For doctors, understanding the patient's perception of the
disease is obviously more important for treatment compliance and
follow-up than the simple identification of individual symptoms and
their progress. QoL measurement helps doctors to
remind that the ultimate goal of their intervention is to treat a
patient, not only a disease.
Dr Luc Crasborn